As Invisible Illness Week 2013 draws to a close I decided it was time to stop being invisible myself. A lot of this year has passed me by, because I just haven't had the wherewithall for anything else.But following a diagnosis of ME/CFS this week I'd like feel a little more in control of my life again, there is no treatment as such. but apparently I need to learn about Pacing. Not sure how that fits into busy family life and certainly the non stop mothering of the summer holidays has had me on my knees, which in itself is upestting without feeling all the other symptoms. I want to enjoy my children before they are grown and gone, but they have probably enjoyed the days when they are allowed to watch Peppa Pig, play Minecraft or veg out ( depending on their age) when I am too knackered to do anything.
I am learning to choose the things I really want to do, the ones I want to 'spend' my energy on and some hard decisions have been made. I had been anticipating doing more with my business from September this year when my youngest went to school and my head is bursting with ideas but it will all keep, though I am very excited about doing workshops for the BBC! I love inspiring people's creativity so much I can't bear to give up all my workshops, though they may need further pruning.
Over the course of this year I have got worse and worse so my first aim is to stop the slide, not sure how just yet but I have prescribed myself watching Downton as somehow we missed it on tv. So enough of the pity party, some of my favourite things can be done while sitting with my feet up - crochet, patchwork hexies, reading, drinking wine with friends and making lists to trap my ideas before they fly away. And I'm hoping to make it to Yarndale on the Saturday with a friend, fingers crossed.